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Frequently Asked Questions

What is the cystic fibrosis website?

This dedicated website on cystic fibrosis provides clinical information on all aspects of cystic fibrosis. The site is aimed at health care professionals, individuals with cystic fibrosis and their families. Our objectives are to improve the standards of care of people with cystic fibrosis and to ensure free access to clinical information.

How common is cystic fibrosis in the UK?

About 1 in 2,500 babies in the UK are born with cystic fibrosis. Over 9,000 people currently have cystic fibrosis in the UK. Cystic fibrosis is an autosomal recessive disorder. This means that in order to develop cystic fibrosis you need to inherit two cystic fibrosis genes, one from your mother and one from your father.

How many online courses are there for cystic fibrosis team physicians?

Starting in 2018, fourteen online courses are being completed to support cystic fibrosis team physicians and interprofessional health care team members in their successful application of CFF clinical practice guidelines and recommended practices. All courses are free of charge and available to everyone.

What are the best Facebook groups for cystic fibrosis?

Cystic Fibrosis, another Facebook group, boasts over 27,000 members and honest discussions range from the friendliness of different hospitals to tattoos to PFTs. Cystic Fibrosis Mothers provides information for women with CF who want to get pregnant or who already have children.

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